I AM ALS is hiring a Manager of Community Organizing – apply now!

Title: Manager of Community Organizing

Reports to: Vice President of Community Organizing

Location: Washington, DC is highly preferred; remote will be considered for the right candidate

About I AM ALS 

I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers, and loved ones. We empower advocates to raise awareness and lead the movement against ALS in driving the development of cures. Founded in 2019 by husband and wife team Brian Wallach and Sandra Abrevaya, I AM ALS was born out of their desire to rewrite the ALS story for Brian and the tens of thousands of other people with ALS. 


The Manager of Community Organizing will support the day-to-day implementation of I AM ALS’ volunteer engagement and advocacy structure. They will lead a team of staff and volunteers to carry out programs and initiatives to accomplish the mission and policy, awareness, outreach, and research goals. In collaboration with and under the guidance of the Vice President of Community Organizing, this role will: 

  • Grow and sustain the movement: develop and lead a successful recruitment model that increases our pipeline of new volunteers, supports effective signup and onboarding, and streamlines volunteer workflow and appreciation to support volunteers as effective advocates.  
  • Engagement: patiently and confidently collaborate with multiple stakeholders, including volunteers, to produce a culture of engagement.
  • Supervise: Lead, develop and maintain accountability with direct reports.
  • Volunteer Community Teams: Cultivate a welcoming, inclusive, and productive team and volunteer culture and achieves I AM ALS’ advocacy goals through coaching, thought collaboration, and developing and providing resources.
  • Educate and Empower: Develop and implement programming that educates the community of advocacy opportunities, as well as resources. 
  • Raise awareness and competency around ALS: Create opportunities to educate people outside of the ALS community about ALS and the experiences of people living with ALS to help them become aware of the disease and deepening their understanding of ALS.
  • DC Awareness Event and Lou Gehrig Day: assist and help lead in the activities of I AM ALS’s DC Awareness events and Lou Gehrig Day events throughout the US.
  • Strategy: implementing community organizing strategies and tactics, including digital advocacy.
  • Data: Responsible for tracking KPIs and responding to trends. 


  • 4+ years of work experience in community organizing, or a related field
  • Spanish fluency a plus
  • Exceptional communication skills
  • Effective listening skills and the ability to build rapport with individuals
  • Demonstrated strength in the following areas:
  • Willingness to go above and beyond to be a team player in a fast-paced, startup environment
  • Ability to work independently and productively in a virtual work environment
  • Problem solver, able to find creative solutions when challenges arise
  • Willingness to give and receive feedback, open to individual growth

Travel Requirements

  • Travel to meetings and events expected, up to 10%.

Salary and Benefits

  • Position is full time/exempt with competitive salary and benefits package including excellent health insurance, flexible PTO policy, and more.
  • Salary range for this role is $60,000-$75,000 depending on the candidate’s level of experience.

How to Apply

If you believe you can deliver on these responsibilities, we encourage you to apply. 

To apply, please submit your resume and cover letter to jobs@iamals.org. Please include “Manager of Community Organizing” in the subject line.

We will find cures for ALS. The only question is when. That answer depends on you.

Stay informed on I AM ALS’ progress and what you can do to help us make hope real.

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