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WIN: $95M for ALS Research!

Help keep up the momentum: ask Congress to keep ALS research funding at the top of their priorities. 

More Funding for ALS

For Love & Life

This powerful documentary is about I AM ALS, its inspiring co-founders Brian & Sandra, and the revolutionary movement they built.

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Ask your Officials
to Join the ALS Caucus!

The ALS Caucus is a bipartisan group of champions who lead Congressional policy to end ALS.

Contact your Elected Officials

Find Your Community

Learn about ways to get involved and join the I AM ALS community.

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Join a Support Group

We’re putting an end to ALS. Until that day, we’re here to help.

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Give to End ALS

Can you support our work to end ALS with a donation?

Thank you

I AM ALS brings people together to change the future of ALS through action, connection, and real impact. We can’t do it without you.

Become a Volunteer

Interested in becoming a volunteer?

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Donate

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Empowering the community in the fight against ALS

I AM ALS, a major ALS support organization, is committed to offering comprehensive ALS resources. Our programs are aimed at educating the public about ALS disease, pushing for policy reforms, and assisting families afflicted by the disease. We empower patients and caregivers to become advocates, fund cutting-edge research initiatives, and build compassionate communities through peer-to-peer support and storytelling.

Navigating ALS: What To Do For ALS

If you or a loved one has been diagnosed with ALS, it is critical to understand what steps to take. I AM ALS provides information about getting medical care, joining support groups, and participating in clinical trials. Our team is here to assist you every step of the way.

Supporting Families: How to Help a Family With ALS

Caring for a loved one with ALS can be difficult. we connect individuals to local advocacy groups, emotional wellness resources, and community-led initiatives that empower caregivers and families. Through collaboration and shared experiences, we help build a supportive network so no one faces ALS alone.

Understanding Lou Gehrig’s Disease

Lou Gehrig’s disease, sometimes known as ALS, impacts many people in our community. By increasing awareness, we aim to create a supportive atmosphere for those affected and help propel research efforts toward a solution.

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Learn more about ALS

Heroes in our advocate network.

Increase in federal funding for ALS research.

Actions taken to push forward innovative ALS policy.

ALS impacts every community, including yours.

“Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.”

Brian Hutner

Brian's

Alan Waite

Alan's

Ken Dworkin

Ken's

Laura Donkel

Laura's

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FAQs

What is Lou Gehrig’s disease, and what does I AM ALS do?

Lou Gehrig’s disease, also known as ALS (Amyotrophic Lateral Sclerosis), is a progressive neurodegenerative disease. I AM ALS is a non-profit organization that empowers people living with ALS, supports their families, and advocates for research and policy change to improve lives and find a cure.

What services does I AM ALS offer for people with ALS?

I AM ALS provides advocacy, virtual support groups, emotional and logistical guidance, and connects families to resources and clinical trials. All support is free and tailored to individual needs

How do I know if I’ve found the best ALS disease organization?

I AM ALS is recognized for its community-driven approach, impactful advocacy, and comprehensive support. It has helped increase federal funding for ALS research and passed major legislation to improve access to treatments

Are there affordable ALS resources near me?

Yes, I AM ALS offers free resources, support groups, and guidance for people living with ALS and their families, regardless of financial situation. There is no cost to access these services

How can I help my family if someone is diagnosed with ALS?

I AM ALS provides expert advice, caregiver resources, and practical tips for supporting loved ones. You can join a support group or connect with a trained mentor for one-on-one guidance

What makes I AM ALS a leading ALS organization?

I AM ALS stands out for its community-led approach, impactful advocacy, and comprehensive support for people with ALS and their families. The organization has driven major policy wins and increased federal funding for ALS research.

How does I AM ALS support ALS advocacy in Washington, DC?

I AM ALS leads advocacy campaigns, partners with policymakers, and mobilizes the ALS community to pass legislation like the ACT for ALS and the Elizabeth Dole Home Care Act, increasing access to therapies and support for patients.

Does I AM ALS use the latest technology to support ALS families?

Yes. I AM ALS leverages digital platforms for support groups, advocacy, and information sharing, ensuring accessible and up-to-date resources for families nationwide.

What are the best practices for ALS support?

I AM ALS follows industry best practices, including evidence-based support, patient-centered care, and collaboration with leading ALS researchers and clinicians.

How do I start helping the ALS community?

You can volunteer, donate, or join an advocacy campaign through I AM ALS. Every action helps accelerate the search for a cure and supports families living with ALS.