1. Take Action

Welcome to the Revolution

Thanks for visiting, change maker: Together we raise awareness, increase ALS research funding, pass legislation and beyond. We rewrite the ALS story.

326020 Bold actions have been taken so far

How much change will you make to find cures for ALS?

I'm new here! This isn't my first rodeo!

Engagement Level 1

Tweet at your Senators to pass S. 326, incorporating the Elizabeth Dole Home Care Act

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Build Congressional Champions Through the ALS Caucus

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Tell Cigna: Approve Coverage for Relyvrio

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Test Your ALS Knowledge

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Join the Movement and Be in the Know

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Show who ALS impacts through the Every Community map

Raise awareness

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Engagement Level 2

BENEFIT Act of 2023

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Protect South Carolinians from Genetic Discrimination! Pass H. 4218: Genetic Protection!

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Elizabeth Dole Home Care H.R.542/S.141

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Sign Up to Receive our Newly Diagnosed Email Series

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Contact your congresspeople about the Promising Pathway Act

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Engagement Level 3

#Fight2EndALS campaign-Juan’s Story

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Leanne’s Story

Spread the word

Rebecca’s Story

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Elin’s Story

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Youth Lou Gehrig Day Team

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Justice for ALS Veterans Act 2023


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Engagement Level 4

ALS Better Care Act

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Firefighter- Michelle’s Story

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The Write Stuff Team


Lou Gehrig Day Team

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Be part of I AM ALS’ 2024 ALS Awareness event!

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ALS Veteran Champion Award

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Engagement Level 5

#Fight2EndALS campaign-Katie’s Story

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Become a Volunteer!

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Visit Your Representative’s Home Office or Set Up a Virtual Meeting

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Visit Your Senators’ Home Office or Set Up a Virtual Meeting

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Clinical Trials Team

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100,000 heroes in our advocate network.

Millions more talking about ALS.

Over 51,000 actions taken to push forward innovative ALS policy.

$55 million increase in federal funding for ALS research.

ALS impacts every community, including yours.

Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.

Guillermo “Gill” Garcia
a U.S. military veteran living with ALS, living with ALS

Looking for more ways to get involved?

Join one of our teams led by people living with ALS, caregivers and advocates who are making the impossible possible every day.

Clinical Trials

The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal.

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Community Outreach

The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS.

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Familial ALS

The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families.

Read more and reach out to get involved.

Legislative Affairs

The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones.

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Thank You Squad

The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach.

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The Veterans Affairs Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care.

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Join us in rewriting the ALS story. Learn about actions you can take through your inbox.

We need you to end ALS. By signing up for I AM ALS updates, you will stay informed and empowered with the latest I AM ALS resources and actions. Welcome to the revolution!

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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site