Privacy Policy

Who we are

Our website address is: https://www.iamals.org.

What personal data we collect and why we collect it


When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.


If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.

Contact forms


If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select "Remember Me", your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.


Who we share your data with

How long we retain your data

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.

For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

What rights you have over your data

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service.

Your contact information

Additional information

How we protect your data

What data breach procedures we have in place

What third parties we receive data from

What automated decision making and/or profiling we do with user data

Industry regulatory disclosure requirements

I AM ALS (the “Organization”) is committed to protecting the privacy of every individual who uses the Organization’s website, mobile applications or other online products and services (collectively, the “Website”). This Privacy Policy explains the Organization’s practices concerning personally identifiable data and other information that is collected through the Website.

By visiting the Website, you agree to be bound by the terms and conditions of the Organization’s Terms of Use and the practices described in this Privacy Policy.

Data Collection and Retention
You are not required to provide any personal information to view the public areas of our Website. However, we may collect your name, mailing or billing address, telephone number, email address and credit card information to the extent the collection of such personal information is necessary when you engage in any of the following activities:

  • Make a donation to the Organization
  • Register for our email list

When you provide the Organization with your personal information, we may ask for your consent to use that information for the following additional purposes:

  • Supply you with information, including, but not limited to, news, events and services related to the Organization
  • Request volunteer time for, or monetary contributions to, the Organization
  • Inform you about events and activities related to the Organizations mission

We will not use any personal information that you provide for one purpose (e.g., making a donation) for another purpose (i.e., supplying you with information related to the Organization) without your prior consent. Refusing consent to share the information for another purpose will not prevent your ability to provide the information for the originally intended purpose.

The Organization also uses the personal information you provide to us for legitimate internal purposes, such as completing and tracking your transaction, analyzing trends and collecting statistics or analytics to improve the services provided by the Organization. We will disclose your personal information to a third party only if we have previously notified you and obtained your consent and in accordance with that notification and consent, except as follows:

  • To comply with applicable laws and lawful government or regulatory requests
  • To operate our systems properly
  • To protect the Organization and its members

The Organization may also compile and provide anonymized and/or pseudonymized, aggregate statistics about our visitors, donations, traffic patterns and related site information to third parties so that the Organization can improve the services it and those parties provide to the users of the website. We may also share anonymized and/or pseudonymized information with third-parties who help us analyze and understand our donor and membership base. Finally, we may also compile and display on the Website anonymized and/or pseudonymized, aggregate information to help display for our community the use and impact of the Website.

The Organization may also collect information that you provide us when you comment on posts, participate in message boards, and submit images, photos, videos, or other content to the services. We may ask you for additional information at other times.

We retain personal financial information that you provide only for so long as is necessary to provide the services for which we have obtained your consent and to comply with our legal and regulatory obligations.

Data Security
We use encryption and security protocols (Secure Socket Layer-SSL) when processing financial transactions and storing or processing personal information. We store any personal information that we have collected on password-protected servers. We never store credit card numbers. We have and will educate staff members who have access to personal information about the importance of safeguarding your personal information. However, such precautions do not guarantee that our Website is invulnerable to security breaches. The Organization makes no warranty, guarantee or representation that the use of our Website is protected from viruses, security threats or other vulnerabilities or that your personal information will always be secure.

Standard Web Server Traffic Pattern Information and Third Parties // Google Analytics The Organization collects general traffic, site usage and length of stay information of those who visit the Website. This type of information is used to help the Organization improve the functionality of our Website. Such information is not linked to individual visitors.

When you visit the Website or view one of our e-mails, we may place on your computer’s hard drive pieces of data, called cookies, that enable us to track and target your preferences, so that we can recognize you as a return user and personalize your experience. The cookies will be stored on your computer’s hard drive until you remove it. You may instruct your browser to notify you of, or automatically reject, cookies. If you reject our cookie, you may still use our Website, but you may be limited in the use of some of the features. Some of our partner organizations may also use cookies on our Website. However, we have no access to, or control over, these cookies and we do not accept any responsibility for such use.

Google Analytics is Google’s free web analytics tool that helps us to understand how our visitors engage with our Website. Google Analytics collects information anonymously and reports website trends without identifying individual visitors. Google Analytics uses its own set of cookies to track visitor interactions. These cookies are used to store information, such as what time the current visit occurred, whether the visitor has been to the site before, and what site referred the visitor to the web page. Google Analytics customers can view a variety of reports about how visitors interact with their website so they can improve their website and how people find it. A different set of cookies is used for each website, and visitors are not tracked across multiple sites. Google Analytics customers are obliged to notify users of their use of analytics software. To disable this type of cookie, some browsers will indicate when a cookie is being sent and allow you to decline cookies on a case-by-case basis. In addition to declining cookies, you can also install the Google Analytics opt-out add-on in your browser, which prevents Google Analytics from collecting information about your website visits. You can opt out by clicking here.

The Website may contain links to or from other websites. Please be aware that we are not responsible for the privacy practices, security, or content of other websites. This Privacy Policy applies only to the information we collect on the Website. We encourage you to read the terms and conditions and privacy policies of other websites you link to from our Website or otherwise visit.

GDPR – Your Rights
Under the EU General Data Protection Regulation (the “GDPR”), EU residents have a number of important rights. In summary, those include rights to:

  • Fair processing of information and transparency over how we use your personal
  • Access your personal information and certain other supplementary information that this
  • Privacy Policy is already designed to address
  • Require the correction of any mistake in the personal information that we hold about you
  • Require the erasure of personal information concerning you in certain situations
  • Receive the personal information concerning you that you have provided to us, in a structured, commonly used and machine-readable format and have the right to transmit that data to a third party in certain situations
  • Object at any time to the processing of your personal information for direct marketing
  • Object to decisions being taken by automated means that produce legal effects concerning you or similarly significantly affect you
  • Object in certain other situations to our continued processing of your personal information
  • Otherwise restrict our processing of your personal information in certain circumstances.

If you would like to exercise any of those rights, please:

  • Email us at info@iamals.org;
  • Provide enough information to identify you (e.g., name, email address);
  • Provide proof of your identity and address (a copy of your driver’s license or passport
    and a recent utility or credit card bill); and
  • Provide the information to which your request relates.

You have the right, at any time, to lodge a complaint about the processing activities of your personal information by us with the applicable Information Commissioner’s Office, or other competent supervisory authority.

After providing your initial consent, if you subsequently do not wish to receive additional promotional e-newsletters, e-mail messages, or e-mail or postal mailings about the Organization’s programs, please inform us by e-mailing info@iamals.org.

Notification of Changes
Please be aware that, although we try to update our Website regularly, we do not guarantee that it is current. We may revise this Privacy Policy from time to time. If we decide to change our Privacy Policy, we will post the revised policy on our Website within a reasonable period of time. As we may make changes at any time without notifying you, we suggest that you periodically consult this Privacy Policy. Please note that our rights to use personal information you have already given us will be based on the policy in effect at the time the information is used.

Acceptance of Terms of Use

Contact Us
If you have any questions about our policies or compliance, or wish to exercise any of your rights under this Privacy Policy, write to:

1200 Pennsylvania Avenue NW, #14135
Washington, DC 20044
Email: info@iamals.org

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