Julie Rodriguez

Aug 15, 2024

This disease is hard to see take over someone you love. Our dad Hugo Rodriguez was diagnosed and suffered 8 long months with ALS. He lost the ability to walk, move, and speak in a short period of time. My dad was loving, hard-working, funny, and very respectful toward...

Elizabeth Wooten

Aug 15, 2024

When your family is affected by ALS everything becomes “before” and “after”. My husband, Robin Wooten, was diagnosed with Bulbar ALS in the summer of 2016 he was 49 years old. He died July 21, 2017. My daughter, Olivia Whitford Wooten (pictured...

Melissa L Armstrong

Aug 10, 2024

We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We...

Tonia O’Neil

Aug 10, 2024

This horrible disease took so much from her so quickly. Hello. My name is Tonia O’Neil. My mom Belinda McCluskey was diagnosed with ALS in November 2022 and passed away a short 10 months later September 11, 2023. This horrible disease took so much from her so quickly....

Nicky Trasviña

Aug 10, 2024

My dad witnessed the SF Giants win the pennant for the World Series in 2010 and again in 2012. He passed away six months later at the age of 100. My dad would hand us our gloves to play catch in our big backyard. My favorite part was to catch my dad’s super high...