This horrible disease took so much from her so quickly.

Hello. My name is Tonia O’Neil. My mom Belinda McCluskey was diagnosed with ALS in November 2022 and passed away a short 10 months later September 11, 2023. This horrible disease took so much from her so quickly. She prayed that she would be eligible for stem cell or a research program. Anything that would give a glimmer of hope that she would make it long enough to see her great granddaughter be born and to hold her. So many things happened so quickly and I regret so much. That when she was able to write I didn’t keep a sample of her handwriting to me. That we didn’t discuss certain things.

Everywhere you go during the year you will get asked about rounding up your bill or donating to a cause. Example: cancer, St Jude’s, etc…. But you NEVER hear about ALS.

As a matter of fact, I wanted to get a personalized license plate in the state of Georgia for ALS awareness only to find out. There isn’t one. I was shocked to see that only a couple states offer it. How can we get these specialty plates in every state so that part of the proceeds go to research.

I pray everyday for the families and people who are struggling with ALS. We need to educate people wayyyyyy more on this and get more funding rolling for a cure.