Become a Volunteer!

I AM ALS is a community-centric movement revolutionizing how people living with and impacted by a disease can change the landscape. This community of people living with ALS, caregivers, and loved ones is making the impossible possible. We couldn’t do all the amazing things we do without YOU.

Want to join the movement to end ALS? That’s great. There are so many ways to join. Read the descriptions below and check boxes on the right to sign up for volunteer opportunities that interest you.

Community Support Programs:

I AM ALS’s Community Support Team provides a suite of initiatives to help people living with ALS, their caregivers, and loved ones. The programs are designed to provide support, education and resources to address the myriad concerns that accompany ALS. You can connect with the Community Support Team at gethelp@iamals.org

Become a Mentor through the Peer Support Initiative 

The Peer Support Initiative connects those impacted by ALS to one another to share their perspective of living with or caring for someone with ALS, what they found to be helpful, and to provide unique support. If you are interested in learning more about becoming a mentor to others impacted by ALS, click here: https://www.iamals.org/action/peer-support-initiative/

Community Teams:

I AM ALS’ Community Teams are crucial to the ALS movement. These teams are

led by community members and self-organized around a shared focus, strategy, and goals. For example, the Veterans Team improves healthcare and supportive services for Veterans, and the Legislative Team works with Congress to change policies and increase federal funding for ALS. These teams meet weekly or every other week. While these advocates are incredible, don’t be intimidated. Everyone was new once!

Clinical Trials

The Clinical Trials Team works directly with researchers, government agencies, and drug sponsors to ensure accessibility, efficiency, and humaneness of ALS drug and therapy development and approval, and collects and distributes information regarding clinical trials and the latest research to the ALS community. Read more.

Community Outreach

The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of raising awareness of ALS and the movement within the ALS community and the general population. Read more.

Familial ALS

The Familial ALS Team raises awareness of familial ALS and empowers, supports, and advocates for potential and actual ALS gene holders and their families. Read more.

Legislative Affairs 

The Legislative Affairs Team advocates to secure federal funding and change public policy to accelerate ALS treatments, cures, and support those living with ALS and their loved ones. Read more.

Lou Gehrig Day

The Lou Gehrig Day Team works to bring awareness of ALS, Lou Gehrig Day, and Lou’s legacy and bring together the ALS community for an incredible day. Read more.

The Many Shades of ALS

The Many Shades of ALS Community Team brings attention to and provides resources with the mental, physical, and social health of people of color living with and impacted by ALS. Read more.

Thank You Squad

The Thank You Squad cultivates donor relationships through a personalized touch individual donor touch. Read more.


The Veterans Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care. Read more.

The Write Stuff

The Write Stuff Team encourages ALS advocates to enhance their advocacy, raise awareness, and share their story through the power of the written word. Read more.

Youth Lou Gehrig Day

The Youth Lou Gehrig Day Team works to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Read more.

Join the Core:

The Core

Don’t have the time or ability to join a community team, but still want to become an I AM ALS volunteer and support projects and community teams? Join The Core to help advocates accomplish their plans! The Core is a listserv where I AM ALS staff and volunteers share advocacy opportunities that you can choose to participate in. Think of The Core as a group of ALS advocates ready to help other ALS advocates when they are able. Everyone who joins a community team automatically becomes a member of The Core. 

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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site