Emily Cerbone

Aug 10, 2024

The diagnosis devastated all of us. “When people describe my dad, I always hear him described as quiet and kind. True. My dad also always thought first of others and had trouble saying, “No.” As an adult, I constantly reminded him that it was ok to sometimes say...

Whitford Wooten

Aug 10, 2024

7 years after my father, I was diagnosed with ALS at 31. In August of 2016 my dad was diagnosed with bulbar ALS. He lived 11 months. I quit my job and moved home to help my mom be one of his caretakers. He was 51 when he passed away. After a biking accident in 2021, I...

MELISSA JACKOWSKI

Aug 10, 2024

She was my confidant and always had my back. Debbie lost her life from ALS on 9/26/15. She left behind her husband Tommy, son Danny & daughter Hannah. Debbie was a loving wife, mother, sister, aunt and friend. She was someone who cared deeply for everyone. She...

Becky Kinsel

Aug 10, 2024

Tom was diagnosed with ALS in early 2010. Born March 21st 1948 in Luverne, Alabama, Tom was diagnosed with ALS in early 2010. When diagnosed, Tom was counsel with the Virginia law firm of Sands, Anderson, Marks & Miller and lead the firm’s office in...

Kevin Martin

Aug 10, 2024

When he died, afraid I would forget him, I sat down and started writing stories about my dad. Before I knew it, I had 35,000 words. I know all too well the agony of living with a family member who has ALS. In 2019, my dad died of ALS. When he died, afraid I would...