Nicole Coffin

Aug 10, 2024

The scariest part is every morning waking up to see if he still has full use of everything that he had the day before. My husband now 48 began having symptoms in 2019, we ignored it and chalked it up to him not paying attention. After he began losing weight fast,...

Kimberly Weyker

Aug 10, 2024

Andy is participating in a Healey Clinical Trial for a new ALS medication; in his words, “Even if it doesn’t help me, it could help find a cure so others can survive ALS ten years from now.” My sweet, 6’7” husband of 35 years, Andy (58), was diagnosed one year ago...

Gustiandari Fidhya Permanik

Aug 10, 2024

I really want the best treatment that may improve his ability and slow the progression of the disease. Firstly my dad complained of weakness and pain of the right arm since 10 months ago, at the beginning the doctors suspected carpal tunnel syndrome, and he was...

Helene Brooks

Aug 10, 2024

ALS is not easy and it is not kind, it changes all it effects, not just the person diagnosed with the disease but caregivers as well. February 14, 2019 changed our lives forever, this was the day my husband received his diagnosis of ALS. Since that time, we have tried...

Ashley Lee

Aug 10, 2024

Despite the fact we are Giants fans, we always support the home team as well, so we attended a few Rays games and loved the nostalgia of going together. I grew up in California, raised by a single dad in the San Francisco Bay area. One of our favorite things to do...