I am Helene Brooks
a family member of someone living with ALS,
caring for someone living with ALS
Pennsylvania
ALS is not easy and it is not kind, it changes all it effects, not just the person diagnosed with the disease but caregivers as well.
February 14, 2019 changed our lives forever, this was the day my husband received his diagnosis of ALS. Since that time, we have tried to focus on quality and not quantity and have tried to complete as many bucket list items for Joe as possible (this photo was prior to being named Season Ticket Holder of the Game by the Philadelphia Eagles in 2021)! However, each day that passes makes that harder and harder as Joe now seems to progress by the day. We have been blessed with our two sons who help to care for Joe and try to ensure there is more laughter than tears in our day to day life. But ALS is not easy and it is not kind, it changes all it effects, not just the person diagnosed with the disease but caregivers as well. All that aside, we continue to fight each day and Joe is loved by everyone that knows him and family and friends alike will do what they can to see his infectious smile.
