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ALS is here. But so are we.

Every May, I AM ALS and our community recognizes ALS Awareness Month. This is a time to shine a light on the realities of ALS and to uplift the community of people living with ALS, their caregivers, advocates, and loved ones standing shoulder to shoulder as we seek a cure. In 2025, we’re doing more than raising awareness—we’re unveiling critical insights, amplifying community stories, and inspiring nationwide action.

This year’s campaign runs from May 1 through May 31, and we invite you to join us in making it impossible to ignore the truth: ALS is here. But so are we — and we are not stopping until there’s a cure.

Learn more about our ALS Awareness Month campaign, how you can be involved, and be part of the change.

This is urgent. This is your movement.

Share. Volunteer. Speak up.
Because ALS is here — and so are we.

📣 Your Voice Matters: #ALSisHere #SoAmI

Throughout the month, we’re calling on our community—and the entire country—to raise their voices in solidarity.

Whether you’ve been personally affected by ALS or simply believe that neurodegenerative diseases  need more research, funding, and visibility, this is your moment. Share your story. Amplify posts. Talk to your local media. Make ALS visible. Use the hashtags #ALSisHere and #SoAmI to join the movement.

Click on the image at right to download a PDF with basics about ALS, including key facts, symptoms, who it affects, and more.

📊 New Survey Exposes ALS Community’s Greatest Burdens—and Underscores the Critical Role of Advocates

This May, we’re sharing a powerful release of new national market research that uncovers the urgent challenges faced by people impacted by ALS—from overwhelming financial strain to isolation and lack of adequate support. Learn more about these findings and how the programs, services, and community connections that I AM ALS provides can help address these real needs and fill some critical gaps.

Click on the image at right to see more of this data in the full press release.

Click here to download a one-pager with illustrations of more of the research data results.

Our 2nd Annual ALS Community Summit brings together voices of advocates, people living with ALS, and caregivers/loved ones from across the country. We gather every May for education, collaboration, and visibility. An interactive flag display, dynamic social content, and press events will serve as powerful reminders: people living with ALS are here—and they matter. We’ll have opportunities for advocates, lawmakers, and media to engage directly with the movement. Click on the image at right to learn more!

How to get involved in ALS Awareness Month this May: