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Examining Psilocybin for Existential Distress in Pts with ALS

Virtual

People with ALS can experience emotional distress and mood-related issues such as depression, a decline in quality of life, and feelings of hopelessness and helplessness, known as existential distress. There are few therapies that currently treat these symptoms in a significant or sustained way, and those that do often have unwanted side effects and limited […]

Free

2025 Lou Gehrig/ALS Awareness Library Campaign

Virtual

Join us to learn more about the 2025 Lou Gehrig Day/ALS Awareness Library campaign. This initiative encourages libraries nationwide to host events, book displays, and educational programming in honor of Lou Gehrig Day (June 2), raising awareness about ALS and Lou Gehrig’s legacy. The focus will be on engaging communities, educating the public, and supporting […]

Free

I AM ALS December Social Hour

Virtual

Join us on December 17, 2024 at 3pm EST for our final 2024 social hour. Social Hour is a one-hour gathering designed to help community members meet new people and start building connections. It’s a relaxed space where you can chat, unwind, and get to know others, whether you’re reconnecting with familiar faces from our […]

Free
Chicagoland Support Group

Chicagoland Support Group

Virtual

Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

AI in ALS

Virtual

Advanced methods of machine learning have paved the way for a new generation of medical and clinical research. New methods and data resources can offer better diagnostics, new therapeutics, and disease management. Conditions such as ALS are uniquely suited to benefit from these strategies, but there are important considerations. From the basics of what makes […]

Free

Impact of Cultural Beliefs & Acceptance in ALS

Virtual

Impact of Cultural Beliefs & Acceptance in ALS and Terminal Diseases When: Tuesday, December 10⋅4:00 – 5:00pm Where: Zoom (sign up for more info) The Many Shades of ALS community team brings attention to and provides resources for the mental, physical and social health of people of color living with and impacted by ALS. The […]

Free

CP-RND ALS PPP Public Forum

Virtual

Register now for an upcoming virtual forum highlighting Critical Path for Rare Neurodegenerative Disease (CP-RND) AMP for ALS Public-Private Partnership (PPP) and its progress toward accelerating new treatments for ALS. This is a continuing series of sessions offering a chance for feedback and questions. This will be an excellent opportunity to hear about key developments, upcoming meetings, and […]

Free

Webinar for Applicants to NINDS ALS Expanded Access

Virtual

These webinars aim to inform and answer participant questions on the NINDS Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required) RFA# TBD. The goal of this announcement is to support the conduct of scientific research utilizing data from expanded access (EA) for investigational drugs or biological products for patients living […]

Living After Loss (Bereavement Group)

Living After Loss (Bereavement Group)

Virtual

An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]

Author Interview with Dr. Dylan Shanahan

Virtual

Join The Scribes of Strength team as we interview Dr. Dylan Shanahan. Date: November 21, 2024 Time: 5pm-6pm EST In Liberation of Being: Allowing Terminal Illness to Teach Us How to Live, Dr. Shanahan invites readers into a journey of profound resilience and philosophical exploration. Diagnosed with ALS in the prime of his life, Dylan […]

Free
Weekly HEALEY ALS Platform Trial Webinar

ALL ALS Consortium with James Berry and Bob Bowser

Virtual

Please join us on Thursday, November 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the ALL ALS Consortium. James Berry, M.D., M.P.H., and Bob Bowser, Ph.D., will present updates about Access for All in ALS (ALL ALS), share ways to stay connected to news in ALS research, and answer questions from […]

Free

My Experience with ALS and RADICAVA ORS

Virtual

Register to hear the personal accounts of life with ALS and treatment with RADICAVA ORS® (edaravone) from 2 people living with ALS. Moderated by an ALS advocate and volunteer, join these panelists as they share their personal advice and perspectives on navigating their journeys with ALS. Brought to you by Mitsubishi Tanabe Pharma America. Stephanie Cantos Stephanie […]

Free