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Living After Loss (Bereavement Group)

Living After Loss (Bereavement Group)

Virtual

An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]

Weekly HEALEY ALS Platform Trial Webinar

Special Topic: ALL ALS Community Q&A Webinar

Virtual

Please join us on Thursday, January 23rd, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the ALL ALS Consortium. Members of the ALL ALS study team will present updates about Access for All in ALS (ALL ALS), share ways to stay connected to news in ALS research, and answer questions from the […]

Free
Chicagoland Support Group

Chicagoland Support Group

Virtual

Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

NEALS Webinar: Annual Update from the Co-Chairs

Virtual

Tuesday, January 21, 2025 11:00 AM - 12:00 PM ET Join us for a NEALS webinar featuring an overview of 2024 milestones, key updates, and plans for 2025. Led by NEALS Co-Chairs Dr. Jinsy Andrews and Dr. James Berry, this one-hour session will provide a Year in Review and highlight NEALS’ initiatives. Additionally, Dr. Jeremy […]

Caregiver Only Support Group

Caregiver Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Caregivers-Only Support Group

Caregivers-Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Fireside Chat with Pathfinders

Virtual

We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event: Fireside Chat: An opportunity to be with caring people who wish to chat, listen, share, and learn -McFinn Lovere & Pathfinders Wednesday, Jan 15, […]

Free

EAPs in ALS: What Have We Learned, Where Do We Go from Here

Virtual

Wednesday, January 15th 2025 1:00 PM - 2:00 PM ET In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can access experimental products. They will review what we have learned from recent EAPs, what is […]

Living After Loss (Bereavement Group)

Living After Loss (Bereavement Group)

Virtual

An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]

Caregiver Only Support Group

Caregiver Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Caregivers-Only Support Group

Caregivers-Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Surviving and thriving through the Holidays with ALS

Virtual

About the Program: Join us for our December Learning Series with Dr. Suzana K.E. Makowski, medical director of Compassionate Care ALS.  Dr. Makowski will discuss spirituality and its role in ALS, along with where we can find light in the darkness and gratitude as we enter a new season and new year. The Les Turner ALS […]

Free