Join us on June 9th, 11:00am ET for a webinar introducing the first Healey ALS MyMatch clinical trial- the ACACIA trial of oral digoxin. Healey ALS MyMatch is a novel, patient-centered, early phase, clinical trial initiative launched by the Healey & AMG Center for ALS at MGH. ALS MyMatch is a series of unique, custom-designed, Phase 1b/2a clinical trials, built using an agile infrastructure and […]
Not all ALS symptoms are commonly discussed. Join our next Town Hall, where we'll delve into some of the often-overlooked and less-discussed symptoms of the disease. Connect with the personal stories of Her ALS Story (HAS) members as they share their experiences with ALS symptoms and the insights they've gained within the community. ALS TDI researchers will discuss […]
Thursday, June 12, 2025 3:00 PM - 4:00 PM ET Military Veterans are diagnosed with ALS at a significantly higher rate than civilians. In 2024, the National Academies of Sciences, Engineering, and Medicine released the Living with ALS report, underscoring the urgent need for stronger coordination between civilian and VA ALS centers to ensure equitable access to […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]
About the Program: Join us for our June ALS Learning Series webinar — a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for Healey ALS Platform Trial, will provide updates on current research and the Acceleration Centers of Enrollment (ACE) initiative, while Anne Marie Doyle, from the Les Turner ALS Foundation, will discuss […]
Our series concludes with How Can We Improve the ALS Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster and more efficient. Hear directly from HAS members as they share their personal diagnosis stories, including their initial symptoms, the journey of seeking a diagnosis, and […]
Expanded Access Discussion with Dr. Rick Bedlack of Duke University
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
