Join us for a Town Hall that demystifies Brain Computer Interface (BCI) technology and explores its potential implications for the ALS community. Leading this comprehensive overview is Daniel B. Rubin, M.D., Ph.D., a neurologist and researcher at Massachusetts General Hospital and an Assistant Professor of Neurology at Harvard Medical School. Discover how BCI is transforming lives and […]
Topic: End-of-Life Autonomy: A Conversation on ALS and Medical Aid in Dying Date & Time: Jul 29, 2025 01:00 PM Description Join us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is, how […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]
Join us on July 24, 2025 at 7pm ET for a 75 minute informational session where we will explore the unique needs of people living with ALS in long-term care settings. You will hear from a panel of individuals living with ALS and health-care providers. 🧑⚕️ Tailored Focus:Explore the unique needs of people living with ALS in long-term care settings. From early-stage […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
On Thursday, July 17th at 12pm ET, join I AM ALS and a panel of people living with ALS, medical researchers, and doctors for a discussion about brain donation. We’ll discuss the critical role of brain donation in research, answer frequently asked questions about the process, and hear how members of our community decided whether […]
Writing can be a powerful way to express ourselves, share our stories, and connect with others – and sometimes it can feel intimidating to know where or how to begin. Whether you’re an experienced writer or someone who’s never put pen to paper, come join us for a discussion on the role and impact of […]
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Expanded Access Discussion with Dr. Rick Bedlack of Duke University
Our series concludes with How Can We Improve the ALS Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster and more efficient. Hear directly from HAS members as they share their personal diagnosis stories, including their initial symptoms, the journey of seeking a diagnosis, and […]