Innovation in Trial Design Clinical trial design is evolving in the ALS/MND community and this webinar will look at what the new models are, how they will change the landscape going forward and what are the practical implications for our community. Join representatives of the of the HEALEY, Multi-Arm, Group-sequential trial NETwork to increase efficiency […]
Biomarkers in ALS/MND July 8 2021, 7:00 - 8:00 AM EST (New York) via Zoom Webinar A biomarker, short for biological marker, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease, or quantify its state and severity, and are critical in clinical trials in determining, […]
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill […]
October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access. Moderator: Sara Feldman – ALS Hope Foundation Panel: Alicia Gibb – MND New South Wales & […]
Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and genetic counselling considerations before testing.
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed. Moderated by Gethin Thomas, Executive Director, Research - MND Australia, hear from AB Science, Amylyx, Biogen, Clene Nanomedicine, Ferrer, […]
Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat, Nadia Sethi & Paula Trefiak.
An informal conversation with the 2022 Award winners on their careers and their contributions to the field of ALS/MND. Panelists include Sally Light (Humanitarian Award recipient), Dr. Richard Bedlack (Forbes Norris Award recipient), Richard Cave (Allied Health Professional Award recipient).
Familial or sporadic ALS/MND, the importance of genetic counselling and testing cant be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND, but has not done genetic testing.
A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips, considerations, and what can be done at home.
