Scientific Advisory Council Update & Q&A
VirtualA mid-year update from the Scientific Advisory Council.
Free
12 events found.
International Alliance of ALS/MND Associations
Events from this organizer
Global Fundamental Rights Survey Results
VirtualThe International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data, strengths and weaknesses at a global level, the questions raised and the topics that require further attention, and how these compared to our 2021 survey.
Free
Mental Health Support for People Living with ALS/MND and Caregivers
VirtualWe will discuss warning signs, how to safeguard, get help, and maintain mental health in people living with ALS/MND and caregivers.
Free
Alliance Meeting
The Alliance Meeting allows member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practices in care, support, technology, science and organizational development. The meeting is attended by 200+ delegates from over 40 countries around the […]
Allied Professionals Forum
2023 Allied Professionals Forum The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF, practitioners from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide. On average, we expect […]
Annual Global Clinical Trials Update
VirtualThis webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed.
Free
ALS/MND Platform Trials Update
VirtualMarch 27, 2024 8:00 AM Eastern Time (US and Canada) This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update us on their approach, recruitment, trial eligibility and their latest news. Moderator: Dr. Nicholas Cole – Chair of Scientific Advisory Council Panel: Dr. […]
Free
Mental Health In ALS/MND
VirtualApril 24, 2024 9:00 AM Eastern Time (US and Canada) This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how to take care of our mental health upon diagnosis, how to deal with our emotions like guilt and anxiety. And how to drive motivation and […]
Free
Respiratory Support in ALS/MND
VirtualMay 29, 2024 7:00 AM Eastern Time (US and Canada) This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, and what is a tracheostomy, how it works, and considerations. Presenter: Susan Brumby
Free
Global ALS/MND Awareness Day webinar
VirtualJune 21, 2024 – 10:00 AM Eastern Time (US and Canada) On June 21, Global ALS/MND Awareness Day, we’ll be holding a public webinar, moderated by our Chair, Calaneet Balas, to explore the impact of the Ice Bucket Challenge, and how it raised the profile of the ALS/MND and led to significant advancements in care, […]
Free
Masterclass: Engaging in Difficult News with PALS & CALS:
Le Centre Sheraton Montreal 1201 Boulevard Rene-Levesque West, Montreal, Quebec, CanadaEngaging in Difficult News with PALS & CALS: Sharing Professional Insights and Building Skills Tuesday, December 3 | 9am-12pm ET | Le Centre Sheraton Montreal (in-person only) Delivering an ALS/MND diagnosis is only the beginning of many difficult conversations that allied health professionals (AHPs) must navigate as the disease progresses. This masterclass provides the opportunity […]
Masterclass: Upstream with a Paddle
Le Centre Sheraton Montreal 1201 Boulevard Rene-Levesque West, Montreal, Quebec, CanadaUpstream with a Paddle Tuesday, December 3 | 2pm-5pm ET | Le Centre Sheraton Montreal (in-person only) Healthcare professionals often find themselves working tirelessly downstream, helping others navigate life after an ALS/MND diagnosis, only to lose sight of their own well-being. The risk of burnout seems inevitable, but it doesn’t have to be. This three-hour […]