Steven Shappell

Aug 10, 2024

Every spring we’d head to Florida to watch Cardinal spring training. My younger brother Scott was diagnosed with ALS in 2008 and passed away on April 1, 2015. From the time when we were little children, Scott and I played little league baseball while our Dad...

Vicki Zwicker

Aug 10, 2024

I am still trying to adjust to life without her, as I had always taken for granted that we would grow old together. My sister Bronwen was an artist, musician, a loving friend, and always the funniest person in the room. She was diagnosed with ALS in December 2017 at...

Margaret Plews-Ogan

Aug 10, 2024

Our family has always lived life with purpose, wanting to make the world a little bit better. My husband Jim and I have been married for 44 years. We met in college and have been soul mates ever since. He was diagnosed with ALS in December 2021. We have two amazing...

Gary Tingwald

Aug 10, 2024

He kept his sense of humor and his spirit until his last breath. Gary and I were married 50 years when he passed away. We have 4 adult children and 7 grandchildren from age 8 to 23! Gary was a minister. He loved and served God. He was diagnosed with Bulbar ALS in 2012...

Kimberly Wilkins

Aug 10, 2024

There are a total of 10 children among my siblings and me who may also be gene carriers. My grandfather (whom I never met), my father, and my brother have passed from ALS. I am an ALS gene carrier. There are a total of 10 children among my siblings and me who may also...