Sarah Parton

Aug 10, 2024

Knowing that future generations may be given this diagnosis make me more motivated than ever to prioritize and fight for pre-symptomatic treatment, expanded genetic testing, and genetic research funding. My name is Sarah and I have ALS. This is a disease I have always...

Helene Brooks

Aug 10, 2024

ALS is not easy and it is not kind, it changes all it effects, not just the person diagnosed with the disease but caregivers as well. February 14, 2019 changed our lives forever, this was the day my husband received his diagnosis of ALS. Since that time, we have tried...

Greg Heydet Sr

Aug 10, 2024

I also coach travel softball with a walker.

John Hahn

Aug 10, 2024

Over a year and a half I started to develop L drop foot and saw a local neurologist and orthopedic surgeon. Over a year and a half I started to develop L drop foot and saw a local neurologist and orthopedic surgeon. I had an MRI of my spine and x-rays showed arthritis...

John Reed

Aug 10, 2024

Throughout our journey we advocated for ALS showing what our journey was like and helping others through social media. My husband John was diagnosed in 2013 when symptoms of slurred speech started. John chose to receive a feeding tube in 2014 and a trach in 2015....