I have had to learn how to ask for help and how to accept it. How to live in the now and concentrate on those I’m with. How to rethink my definition of success and what I want from life. During the spring of 2018, I began waking up in the middle of the night...
I want to stand by him and others to fight this disease and work toward building the first generation of survivors. One of my childhood friends was recently diagnosed with ALS. This is someone I explored the woods with, went boating with, and made movies with. This is...
One of the first signs of ALS came as I was playing baseball. I hit a weak grounder to third and as I was trying to dig it out and run to first as hard as I could, I tripped and fell. It was the first sign of foot drop caused by ALS. Some parents get to brag to the...
My grandmother truly led the way for me. When I was just 5 I learned the ASL phrase for “I love you.” It was taught to me by my grandmother in the hospital where she spent time before passing away from ALS. Years down the road, I became a massage therapist...
Help others with disability. Help others with disability. My former librarian passed away from ALS. We walk in honor of people with ALS at my former high school.