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Rachel Doboga

Rachel Doboga

I came to see that in my mind, I am free. It is the one part of me that ALS can’t tame. My mind is a mighty force, it’s own universe apart from my disease. When I was diagnosed with ALS at age 28 in 2015, I felt like I lost everything. My body, without...
Robert Bradford

Robert Bradford

I won’t live to see the benefits that will come about from this research, but others will. Others like my children and grandchildren. My name is Robert P. Bradford. I am 68 years old. I served in the Navy during the Vietnam Era on the USS Worden as a hull...
Andrea Allen

Andrea Allen

Tianna passed away on April 5, 2015, at the age of 27. It was June 2014 when my daughter lost her voice. In March 2015 my daughter Tianna was diagnosed with a severe form of ALS caused FUS gene mutations. The doctor initially told us that she had 6 months to live....
Treg Charlton

Treg Charlton

Unexpectedly, I literally joined him in the fight after receiving the same diagnosis in 2010. My friend since childhood, Barry Winovich, was diagnosed with ALS in 2006. He was a beloved character & terrific advocate for finding a cure. Unexpectedly, I literally...