Steve Rudolph
The saving grace is that I have a very slowly progressing version of the disease. Most people would not know that I have ALS unless they look at the twitching in my biceps. I was diagnosed with ALS about 2 years ago. I am 63 years old in the prime of life when I found...Lindsey Heiser
I remember my sister and brother coming up to me and asking what my father was like when he was healthy. My father has had ALS for 15 years. Growing up I was fortunate enough to see my father in his “healthy” stage. I remember my sister and brother coming up to me and...
Cassandra Haddad
We have lost at least 33 family members to ALS including my mother on Aug 30 2022. We have lost at least 33 family members to ALS including my mother on Aug 30 2022. I am a genetic carrier of SOD1 A5V an aggressive form of ALS. I fight in memory of my family, for my...