Scotty Easter

Aug 10, 2024

I was terrified to talk about due to the amount of people in my family it has affected. Since being diagnosed I come to realize that’s there is a need to bring awareness and to help researchers to raise money to help find a cure. Hello, My name is Scotty Easter, I...

Melissa L Armstrong

Aug 10, 2024

We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We...

Victoria Purdum

Aug 10, 2024

5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My name is Victoria Purdum and I live in Maine. 5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My wife, Trudi Chase, is my caregiver. I have limb...

Robert Bradford

Aug 10, 2024

I won’t live to see the benefits that will come about from this research, but others will. Others like my children and grandchildren. My name is Robert P. Bradford. I am 68 years old. I served in the Navy during the Vietnam Era on the USS Worden as a hull...

Alexis Behan

Aug 10, 2024

An estimated ten members of my family have been diagnosed with ALS including my younger brother, father, grandmother, aunt and uncle. My name is Alexis and I carry the SOD1 ALS gene. An estimated ten members of my family have been diagnosed with ALS including my...