Lauren Mamola

Aug 10, 2024

I want to be a voice for those who don’t have the bandwidth, but who deserve to have their voice heard, to have their needs met. My dad was my everything. From daily political discussions over the dinner table, to learning how to cook from my dad, skiing with my...

Melissa L Armstrong

Aug 10, 2024

We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We...

Tonia O’Neil

Aug 10, 2024

This horrible disease took so much from her so quickly. Hello. My name is Tonia O’Neil. My mom Belinda McCluskey was diagnosed with ALS in November 2022 and passed away a short 10 months later September 11, 2023. This horrible disease took so much from her so quickly....

Sabrina Kolenovic

Aug 10, 2024

It’s difficult watching a family member go through the struggles that come with battling ALS. My uncle Harry was diagnosed with ALS in late October/November of 2022. We were in total denial as he was as strong as a bull. He worked 3 jobs and nothing could stop him....

Kendra McIntosh

Aug 10, 2024

He struggled for 1.5 years to get diagnosed and once diagnosed he passed 402 days later. My husband coached youth baseball for 20 years before he retired. In Spring of 2023 he coached from his wheelchair through Allstars. He struggled for 1.5 years to get diagnosed...