12 events found.
Webinar
New Gene Therapy for ALS
VirtualWe invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, April 13, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central Time -7:00pm Eastern Time The meeting will be approximately 45-60mins long followed by […]
Reimagining rare disease detection: Who needs to be at the table?
VirtualOverview Rare diseases pose unique challenges to the health care system. Unlike common diseases that affect millions, such as type 2 diabetes, a rare disease may have only 50 patients worldwide, spanning numerous countries, languages, and cultures. The detection of rare diseases—~75% of which have a genetic basis—is generally difficult and costly, often requiring sequencing […]
Free
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, April 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kuldip Dave Ph.D. vice president for research at the ALS Association. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial […]
ALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS
VirtualALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS Thursday, April 21, 2022 | 3:00pm - 4:30pm ET Recently, ALS TDI and Google introduced new groundbreaking digital tools that are able to objectively measure ALS symptom progression. These new tools have now been released publicly to anyone who might make use of them – including clinicians, […]
Free
HEALEY ALS Platform Trial Q&A Webinar
Virtual
Free
Augmentative communications program for ALS
We are excited to host EverythingALS Community Event: Augmentative communications program for ALS. We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, April 27, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]
Free
Veterans Helping Veterans with ALS: Department of Veteran Affairs Benefits & Advocacy
VirtualThursday, April 28, 2022 from Noon to 1:00pm CT About the Program: Are you a veteran living with ALS? Need help navigating the Veterans Administration system and don’t know where to start? Hear from Robert Statam, Sr. and Winston Woodard III of the Paralyzed Veterans of America (PVA) who specialize in providing navigation services for […]
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, April 28th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kelly G. Gwathmey M.D., site investigator at Virginia Commonwealth University. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and […]
Free
An Introduction to Preapproval Access: Expanded Access, Compassionate Use & Right to Try
VirtualThe various pathways of preapproval access are confusing, and often misunderstood. CUPA will help bring clarity to this complex topic. About this event Most people access unapproved medical products through clinical trials, but what happens when patients can’t get into a clinical trial, or there is no trial focused on treating their disease? Non-trial […]
Free
ALS TDI Community Conversations
VirtualRegister to Attend a Community Discussion on ALS Research and Trials Next Tuesday, May 3rd, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while […]
Free
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, May 5th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Peter Foss, president of ALS Finding a Cure. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and […]
Free