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A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD

Virtual

A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD (Amyotrophic Lateral Sclerosis and/or Frontotemporal Dementia) Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at Mass General Hospital Friday, May 6, 2022 10:30 - 11:30 AM EDT The purpose of this webinar is to provide an overview of a new […]

Free

Moving from a few genes to a genetic architecture for ALS and the insights it provides

Virtual

About the Event Michael Snyder, Ph.D. Title:  Moving from a few genes to a genetic architecture for ALS and the insights it provides Michael Snyder, Ph.D., Professor in Genetics Stanford University School of Medicine Bio:  977 B.A, Chemistry and Biology, University of Rochester, NY 1978-1982 Ph.D. California Institute of Technology, CA Advisor: Dr. Norman Davidson […]

Free

Financial and Estate Planning for the ALS Community

Virtual

About the Program: This webinar will guide people living with ALS and their loved ones through easy-to-understand actionable steps for securing a financial future and optimizing health care. A diagnosis of ALS makes planning for the future more important than ever. These discussions are not easy, but taking the time to gather information and think […]

Free

HEALEY ALS Platform Trial Q&A Webinar

Virtual

Please join us on Thursday, May 19th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Dr. Nadia Sethi, a member of our Patient Advisory Committee. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform […]

Free

Understanding ALS: The Journey of the Clingman Family

Virtual

In recognition of ALS Awareness Month, the Dotdash Meredith DEI Team is partnering with Verywell Health, the ALS Association and Everything ALS to discuss the challenges of ALS with a focus on underrepresented communities. Join us on Tuesday, May 24, 3 p.m. ET. Understanding ALS-Link-FINAL Dr. Jessica Shepherd Chief Medical Officer @Verywell Health Moderator Deb Fabricatore […]

Free

ALS TDI Community Conversations

Virtual

Register to Attend a Community Discussion on ALS Research and Trials On Tuesday, May 24th, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while […]

Free

Immunity, Virus, and the Role of Inflammation in ALS

Virtual

About the Event In this webinar our speaker, MATTHEW S. MILLER PhD, Associate Professor, Biochemistry & Biomedical Sciences talks about Immunity, Virus, and the Role of Inflammation in ALS. We look forward to seeing you there! To Register:  EverythingALS.org/research Questions:  Info@EverythingALS.org RSVP

Free

HEALEY ALS Platform Trial Q&A Webinar

Virtual

Please join us on Thursday, May 26th at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience.

Free

HEALEY ALS Platform Trial Q&A Webinar

Virtual

Please join us on Thursday, June 2nd at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Daniel […]

Free

ALS Town Hall: Discussion on Supplement Use for People with ALS

Virtual

Discussion on Supplement Use for People with ALS Led by Dr. Jinsy Andrews and Dr. Merit Cudkowicz Wednesday, June 8, 2022 | 3:00 - 4:30pm EDT On June 8th, join us for a discussion on supplement and off-label medication use for people living with ALS, led by Dr. Jinsy Andrews, co-chair of NEALS and Director of Neuromuscular […]

Free