Webinar

NEALS Webinar: Tofersen Update   Tuesday, May 2, 2023 4:00 PM ET The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals […]

Implications of tofersen for everyone with ALS   Tuesday, May 2, 2023 4:45 PM ET The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1 […]

About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for […]

An ALS diagnosis often comes out of nowhere. Most people do not even know what ALS is until they are diagnosed with it.  Unfortunately, there are families where ALS is […]

A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips, considerations, and what can be done at home.