Overview Rare diseases pose unique challenges to the health care system. Unlike common diseases that affect millions, such as type 2 diabetes, a rare disease may have only 50 patients […]
Please join us on Thursday, April 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kuldip Dave Ph.D. vice president […]
ALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS Thursday, April 21, 2022 | 3:00pm - 4:30pm ET Recently, ALS TDI and Google introduced new groundbreaking digital tools that are able […]
We are excited to host EverythingALS Community Event: Augmentative communications program for ALS. We invite you to join us and other people with ALS and families to engage in a […]
Thursday, April 28, 2022 from Noon to 1:00pm CT About the Program: Are you a veteran living with ALS? Need help navigating the Veterans Administration system and don’t know where […]
Please join us on Thursday, April 28th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kelly G. Gwathmey M.D., site […]
Raising and supporting children while impacted by ALS. You got questions? We got answers! We know that supporting children while your family navigates ALS can present unique challenges. I AM […]
The various pathways of preapproval access are confusing, and often misunderstood. CUPA will help bring clarity to this complex topic. About this event Most people access unapproved medical products […]
Register to Attend a Community Discussion on ALS Research and Trials Next Tuesday, May 3rd, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development […]
Please join us on Thursday, May 5th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Peter Foss, president of […]
A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD (Amyotrophic Lateral Sclerosis and/or Frontotemporal Dementia) Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at […]
