12 events found.
Education
New Gene Therapy for ALS
VirtualWe invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, […]
Reimagining rare disease detection: Who needs to be at the table?
VirtualOverview Rare diseases pose unique challenges to the health care system. Unlike common diseases that affect millions, such as type 2 diabetes, a rare disease may have only 50 patients […]
Free
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, April 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kuldip Dave Ph.D. vice president […]
ALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS
VirtualALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS Thursday, April 21, 2022 | 3:00pm - 4:30pm ET Recently, ALS TDI and Google introduced new groundbreaking digital tools that are able […]
Free
HEALEY ALS Platform Trial Q&A Webinar
Virtual
Free
Augmentative communications program for ALS
We are excited to host EverythingALS Community Event: Augmentative communications program for ALS. We invite you to join us and other people with ALS and families to engage in a […]
Free
Veterans Helping Veterans with ALS: Department of Veteran Affairs Benefits & Advocacy
VirtualThursday, April 28, 2022 from Noon to 1:00pm CT About the Program: Are you a veteran living with ALS? Need help navigating the Veterans Administration system and don’t know where […]
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, April 28th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kelly G. Gwathmey M.D., site […]
Free
Ask Me Anything ALS: Raising Kids
VirtualRaising and supporting children while impacted by ALS. You got questions? We got answers! We know that supporting children while your family navigates ALS can present unique challenges. I AM […]
An Introduction to Preapproval Access: Expanded Access, Compassionate Use & Right to Try
VirtualThe various pathways of preapproval access are confusing, and often misunderstood. CUPA will help bring clarity to this complex topic. About this event Most people access unapproved medical products […]
Free
ALS TDI Community Conversations
VirtualRegister to Attend a Community Discussion on ALS Research and Trials Next Tuesday, May 3rd, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development […]
Free