The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host a special webinar with leaders from the […]
Expanded Access to Investigational Drugs Friday, January 15, 2021 4:00 - 5:00 PM EST Join us for a webinar on Expanded Access Programs (EAPs). In EAPs people with ALS who are […]
Join us for a HEALEY ALS Platform Trial Webinar, "Pridopidine, Mechanism of Action and Science" with representatives from Prilenia, who will discuss Pridopidine, which is Regimen D in the HEALEY […]
ASK ME: ALS Research and Care in 2021 Please save the date and join us with your coffee and breakfast on a Saturday morning! This informative event will feature leading […]
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the […]
My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document, which is available in hard copy and online, […]
On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex […]
Join us for a HEALEY ALS Platform Trial Webinar, "CNM-Au8, Mechanism of Action and Science" with representatives from Clene Nanomedicine, who will discuss CNM-Au8, which is Regimen C in the […]
At this event, you will hear from the BrainGate team about the research and opportunities underway related to using brain-computer interface technology to restore communication and mobility.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the […]
Join us for a HEALEY ALS Platform Trial Webinar, "Verdiperstat, Mechanism of Action and Science" with representatives from Biohaven, who will discuss Verdiperstat, which is Regimen B in the HEALEY […]
Become an ALS Research Ambassador Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI) online on February 20-21! The ALS CRLI is an annual two-day program […]