12 events found.
Advocacy
Last Day for Public Comment for AMX0035 Advisory Committee
https://www.regulations.gov/commenton/FDA-2022-N-1436-0001
ALS Town Hall: Meet Your ALS Orgs
VirtualALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our […]
Free
More Than Our Stories Conference
Virtual or In PersonYes, your stories are compelling. So are your ideas. We are more than our stories. Please join us in person or virtually on February 14 and 15, 2023, for a day of idea-sharing followed […]
Free
The #ALSinDC Flag Event
Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too! Similar to […]
Free
Virtual Youth & Teen Advocacy Day
Rare Disease Legislative Advocates (RDLA) invites members of the rare disease community between 10 and 18 years old to participate in our first Virtual Youth & Teen Advocacy Day. Advocates […]
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link […]
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link […]
I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to […]
I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living […]