Notre Dame ALS Walk
University of Notre Dame Notre Dame, INNotre Dame Neuroscience Club sponsors an annual walk. Proceeds will benefit families dealing with ALS in St Joseph County via the Indiana ALSA Chapter. Please join us for a beautiful […]
12 events found.
Advocacy
I am ALS AMX0035 Advisory Committee Watch
VirtualWhat’s an AdCom? It stands for an Advisory Committee. And on March 30, 2022, an Advisory Committee will meet to discuss Amylyx Pharmaceuticals treatment AMX0035. This is a crucial step […]
AACT for ALS
VirtualEvent by Michelle Lorenz and No More Excuses! ALS Watch Dog Group Join April 4th at 7 pm ET, 4 pm PT The AACT for ALS was signed into law in by President […]
Free
Last Day for Public Comment for AMX0035 Advisory Committee
https://www.regulations.gov/commenton/FDA-2022-N-1436-0001
ALS Town Hall: Meet Your ALS Orgs
VirtualALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our […]
Free
More Than Our Stories Conference
Virtual or In PersonYes, your stories are compelling. So are your ideas. We are more than our stories. Please join us in person or virtually on February 14 and 15, 2023, for a day of idea-sharing followed […]
Free
The #ALSinDC Flag Event
Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too! Similar to […]
Free
Virtual Youth & Teen Advocacy Day
Rare Disease Legislative Advocates (RDLA) invites members of the rare disease community between 10 and 18 years old to participate in our first Virtual Youth & Teen Advocacy Day. Advocates […]
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link […]