This month, we honor some of our many dedicated volunteers. Today, we’re learning more about Kendra Womack. Kendra lost her mom to ALS and is a member of I AM ALS’ Many Shades of ALS community team. She said responding to the questions below helped her realize just how important volunteering is to her! We’re grateful for you, Kendra!

How has volunteering with I AM ALS changed your life or the life of your family?

Volunteering with I AM ALS has been life-changing. After losing my mom, Elaine, to ALS, I felt unsure of how to use my knowledge of this life altering illness. Being her primary caregiver was one of the hardest and most sacred roles I’ve ever had, and joining this community gave me the support and outlet I needed. I found a space where I could honor my Mom’s legacy, connect with others who understand the depth of this journey, and use my voice to make an impact. It’s helped me transform my pain into advocacy, and that’s brought healing not only for me but also for my family, who see that something beautiful can grow from our loss.

Why did you initially decide to get involved with I AM ALS as a volunteer?

I decided to get involved because I knew I couldn’t just sit in silence after watching my mother, Elaine, battle this devastating disease. I decided her story needed to be heard. I needed to do something to fight back in a way she no longer could. I AM ALS gave me that opportunity. I saw how they centered patients and caregivers, and I felt seen and heard in a way I hadn’t before. I wanted to be part of that and to use my knowledge to offer support to others, raise awareness, and be a part of pushing for real change.

What would you tell others who are facing similar circumstances about what they could gain by volunteering with I AM ALS?

I would tell them that you’re not alone, even when it feels like it. Volunteering with I AM ALS gives you a sense of community, a place to share your story, and the strength to keep going. You gain friends who become like family, and you find a way to carry the love you have for your person forward in a  powerful, tangible way. It’s healing, it’s empowering, and its meaningful. 

Any other words of advice you’d like to share?

Don’t be afraid to share your ALS story. Your experiences matter. It doesn’t matter how you do it… Speaking out, listening, offering support, or by simply showing up, all forms of action make a difference.  You never know how you can help to heal, and inspire others. And in the ALS community, every voice and journey matters.