We are excited to host EverythingALS Community Event: Telemedicine and You: Building Proactive, Personalized Care for all People with ALS. - Brian Wallach, Founder of Synapticure - Brook Croke, MPH, Certified genetics counselor in the Department of Pediatrics at SIU School of Medicine - Danielle Geraldi Samara , MD , Neurologist - Dr. Eric Anderson […]
October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access. Moderator: Sara Feldman – ALS Hope Foundation Panel: Alicia Gibb – MND New South Wales & […]
DAY 3 (Tuesday, Oct. 11h) 9:00am - 4:30pm Eastern Time. We proudly present “NEUROTECH NOW”, a collaboration with Indu Navar, Founder of Everything ALS, Dr. Shelena Lalji, Founder of ALS Heroes, and Dr. Leigh Hochberg, of the Center for Neurotechnology and Neurorecovery at MGH. Morning Session (9:00am - 12:00pm ET): Neurodiagnostics: Digital Biomarkers - more […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
DAY 2 (Friday, Oct. 7th): MODERATOR: TBD 9:30 - 9:45am: Welcome & Introductions 9:45 - 10:45am: Industry Presentations 9:45-10:05am: AC Immune. Speaker: Tariq Afroz, PhD. Abstract Title: “Immunotherapy targeting the C-terminal domain of TDP-43 decreases neuropathology and confers neuroprotection through microglial engagement in mouse models of ALS/FTD”. 10:05am – 10:25am: Axoltis Pharma. Speaker: Sighild Lemarchant, PhD Abstract Title: “A […]
Hora Social del Mes de la Herencia Hispana / Hispanic Heritage Month Social Hour Hola. Que pasa? Como estas? Quieres pasar un rato con algunas personas increibles? Quiere conocer a otras personas hispanas que viven con ELA(ALS) y estan afectadas por ella? Nos alegra que nos haya encontrado! I AM ALS y el grupo Comunidades De […]
Weekly Q&A with guest speaker Catherine Douthwright, PhD, CCRP of UMass Worcester
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving […]
DAY 1 (Thursday, Oct 6th): 10:30 - 10:45am: WELCOME & INTRODUCTIONS 10:45am – 11:45pm CURRENT STATE OF ALS TRIALS MODERATOR: Fernando Vieira, MD 10:45 - 11:05am General overview of ALS Trials: What's new, opportunities and challenges Speaker: Merit Cudkowicz, MD, MSc, Chief of the Massachusetts General Hospital Neurology Service, Director, Sean M. Healey & AMG Center […]
Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen E of the Healey […]
You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have another disability Much more through the question and answer section Jinsy Andrews, MD, MSc, FAAN: Director of Neuromuscular Clinical Trials at Columbia University in the City […]