Are you looking to share your story with a broader audience or increase the scope of your advocacy? If so, using social media platforms like Twitter may help. If you feel daunted or overwhelmed by using social media, you’re not alone! That is why community members Mandi Bailey (aka the Self-Taught Social Media Mama) and […]
Please join us on Thursday, December 8th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, we will be joined by Mia Resendes, Primary Coordinator […]
About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at Shirley Ryan AbilityLab, will discuss the benefits of exercise among people living with ALS along with […]
About the Event Dr. Merit Cudkowicz is the Director of the Sean M. Healey & AMG Center for ALS, Chief of Neurology at Mass General, Director and the Julieanne Dorn Professor of Neurology at Harvard Medical School. Dr. Cudkowicz’s research and clinical activities are dedicated to the study and treatment of people with Amyotrophic Lateral […]
ALS brings with it a lot of uncertainty and loss emotionally and physically – for the person living with ALS and their caregivers and loved ones. As a caregiver, you’ll experience many different emotions along this journey, and with so much to learn plus the shock of diagnosis, it can feel like you’re lost in a foreign […]
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. This year's event takes place between 6 - 9 December 2022. More details on the event will be online soon.
Thursday, December 1st, 5:00 pm EST: Weekly Q&A with guest speaker Catherine Douthwright PhD, CCRP from UMass Worcester- Click here to register Catherine Douthwright PhD, CCRP Catherine brings years of previous research coordinator experience to her current role working on the Platform Trial at the University of Massachusetts Chan Medical School in Worcester, MA, where she also serves […]
Dr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and Ph.D. in Neuroscience at UConn. Finally, he came to Duke where he completed his Medicine Internship, Neurology Residency, Neuromuscular Fellowship, and Masters in Clinical Research […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.) […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
