Receiving an ALS diagnosis is devastating for many reasons, including the knowledge that with a progressive loss of function will potentially come the loss of employment and much-loved activities. This is why the Many Shades of ALS (MSOA) team here at I AM ALS wants to talk to you about a powerful antidote to the […]
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one […]
Gather around, good people! I AM ALS is hosting a Town Hall on Thursday, February 2nd at 5 pm, ET! Brian, Sandra, and I AM ALS’s board will give a presentation on Synapticure, how I AM ALS has taken steps to create an Independent Committee for any matters related to Synapticure, and, of course, answer […]
As ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There are advantages and disadvantages that must be taken into account when considering a feeding tube. It can be helpful to hear from those who have […]
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one […]
They say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your advocacy? Then look no further than Instagram! This photo-centered platform can help you add some creativity and depth to telling your story and advocating in […]
Weekly Q&A with guest speaker Jonathan Katz, MD, Site Investigator at CPMC
