The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one […]
ALS clinical trials must represent all people living with ALS including those from diverse genetic, racial/ethnic, socioeconomic, and geographical backgrounds.
In March 2022, I AM ALS hosted the inaugural I AM ALS Action Summit to engage stakeholders in the ALS community to improve the clinical trial experience for people living with ALS and their caregivers. Summit participants included people living with ALS, loved ones and caregivers, physicians, clinical research coordinators, advocacy organizations, biopharma allies, and key government stakeholders.
This webinar, which will take place on March 8th at 6pm ET, aims to inform the ALS community of the results from the Action Summit and will include an exchange of ideas around clinical trial recruitment and retention and ways in which you can get involved.
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one […]
While there are currently no cures for ALS, there are numerous clinical trials taking place right now across the country with a goal of finding safe and effective therapies. With the many opportunities available, finding the right fit and participating in a clinical trial can be overwhelming and confusing. You and your loved one may […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.) […]
February is filled with holidays: Groundhog Day, Valentine’s Day, President’s Day… It also features our monthly social hour, which isn’t technically a holiday, but we still think it’s pretty darn special! For those who may not know, social hour is an hour-long meeting where members of the community can come to hang out, chat, and spend time […]
We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will provide opening remarks to kick off an impactful event for the rare disease community. This year’s theme is “Intersections with Rare Diseases – A patient […]
