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Inside I AM ALS: Sharing Your ALS Journey

Inside I AM ALS is a personal look into the lives, voices, and journeys of those who make up our vibrant and resilient community—told in their voices and their words. Through personal stories, reflections, and experiences, this space highlights the people behind the mission—individuals living with ALS, caregivers, loved ones, advocates, and allies—all sharing their truth with honesty, courage, and hope. Together, we are changing the narrative and working to end ALS. Here’s a submission from our community member, board member, Veteran, scribes4als.com author, and person living with ALS, Juan Reyes. 

Living with ALS is a journey filled with challenges, triumphs, and deeply personal moments. Each story matters—your story matters. While writing about your experience might feel intimidating or overwhelming, embracing the courage to share can become a source of liberation and empowerment.

Why Share Your Story?

Your voice has the power to:

  • Inspire others who may feel isolated or uncertain.
  • Raise awareness about the realities of living with ALS.
  • Create community by connecting with others who truly understand.
  • Empower yourself by reclaiming your narrative and finding strength in expression.
  • Support mental health by processing emotions and finding relief through storytelling.


Overcoming the Fear of Writing

Writing can feel daunting, especially when it involves personal experiences. You might worry about finding the right words or fear being too vulnerable. But remember, there is no “right” way to tell your story. Your authenticity is what resonates most.

Start small—jot down thoughts, feelings, or moments that stand out. Let your story unfold naturally, without pressure to be perfect.


Scribes4als.com: A Safe Space for Your Story

The blog scribes4als.com is the perfect platform to share your ALS journey without fear of judgment. Created by individuals impacted by ALS, this supportive community understands the unique challenges you face.

Moderators at scribes4als.com are here to help you craft your stories, offering guidance and encouragement every step of the way. By sharing your experiences, you not only help others understand the profound impact ALS has on our lives but also contribute to a collective voice that drives awareness and compassion.

How to Get Started

  • Choose your medium: Whether it’s a blog post, poem, or video, pick what feels comfortable.
  • Focus on what matters to you: Share a day in your life, a breakthrough, a challenge, or a message of hope.
  • Connect with the community: Submit your story to scribes4als.com and find support from others who truly get it.
  • Seek support: Moderators and fellow members are ready to help you refine your writing and share your truth.

Your Story Is a Gift

By sharing your experience, you give others insight and hope. You remind the world that behind every diagnosis is a person with courage, dreams, and resilience.

If you’re ready to share, we invite you to join scribes4als.com—a welcoming home for your voice. Together, we can build a community where every story matters and every voice is valued.