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I am Steve Racey

a family member of someone we've lost to ALS,
someone who cared for a person we've lost to ALS

Florida

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My wife got the news of having ALS on February 16th 2023.

My wife got the news of having ALS on February 16th 2023 and she passed on Jan 19th at 9:22 AM. There is a lot of things that happened in between.

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Madelyn Goldstein

In his final days Greg still tried giving us his contagious smile. By that time, his facial muscles had deteriorated, when he tried to smile it was as if his eyes twinkled and smiled for him.

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Abby Leonard

Never question if your voice matters. It can help build a movement

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Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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