First and foremost, I want to express my heartfelt gratitude to every caregiver—family, friends, and professionals—around the world. Without your dedication, those in need of care would truly be lost. Your love and support are deeply appreciated!
After being diagnosed with Sporadic ALS in 2011, my journey with caregivers began in 2013, thanks to a recommendation from my neurologist. I had a part-time caregiver to help conserve energy, primarily assisting with daily hygiene tasks. Living in a two-story house made energy conservation essential, as climbing stairs daily was quite taxing.
As the disease progressed, I required more caregiver support in 2014. This included assistive medical devices like a cough assist machine, power wheelchair, shower chair, and handrails. Ms. Gray became my daily companion, helping with everything from preparing and feeding meals to conducting breathing exercises and driving me to physical therapy. She was there for my daily commutes to work at CCBC Catonsville and ensured I had meals during the day—her support was invaluable.
I also want to highlight the incredible caregiving of my ex-wives. Balancing childcare, household duties, and full-time jobs, I truly consider them superwomen! They not only managed daily responsibilities but also communicated with medical professionals on various topics, from medical supplies to emergency care, wheelchair assessments, and learning how to use assistive communication devices. Their ability to juggle these tasks further solidifies their superhero status.
Never did I imagine my children would become caregivers for me. However, their athletic backgrounds have given them insight into range of motion and stretching exercises. They found ways to help me, especially early in my journey. I cherish the moments when they echoed my mantra, “no pain, no gain,” creating fond memories—even if I’ve never been the most flexible, lol!
My oldest child played a significant role when I started using an assistive communication device, creating an alphabet chart for me until I received the device. He also helped with daily hygiene care. Being cared for by an adult child is a humbling experience.
Caregiving extends beyond hands-on support. From the start, friends at work organized financial assistance and served as companions for out-of-state trips. A softball tournament and a Go Fund Me campaign exemplify this generosity. The kindness I’ve witnessed from so many has reinforced my faith in humanity—words can hardly express my gratitude.
Howard, a friend who feels like a brother, has gone above and beyond. He not only attended a father-daughter dance with my youngest daughter but also made three round trips from Maryland to Kentucky, allowing me to support my middle son in college and attend his graduation. His care for my family and me is nothing short of incredible!
Having a caregiver for over seven years transforms the relationship into something deeper than business. Stacey, my “right hand” caregiver, has become family. The quality of care she provides is evident and frequently recognized by medical professionals. Stacey understands the joy it brings me to be present at my children’s events, support former student-athletes, and participate in family gatherings. She has accompanied me on every Kentucky road trip, allowing me to attend graduations, weddings, anniversaries, military promotions, and countless other important occasions. Stacey’s kindness is contagious; she inspired her best friend, LaTonda, to lend a hand at family functions and basketball games. I could share stories about Stacey’s generosity, sacrifice, and genuine care all day long. She has been a true blessing to my family and me!
Like me, many others have received caregiver support from family, friends, and professionals. With immense appreciation and love, thank you to every caregiver for all that you do every day! God bless you!