We had plans to continue those adventures well into our senior years, and now those dreams have vanished.
I’m a ...

I want to be around for my children, my grandbabies and everyone else. I WANT TO LIVE!
I was diagnosed three ...

At the age of 52, I was diagnosed with bulbar-onset ALS, a cruel joke since I’m a foodie and love to cook.
I AM ...

I’ve been fighting to improve treatment opportunities as well as advocating for myself and others in the hopes of ...

I AM ALS is not a phrase I’m proud of, but I can be proud of the work I do to help cross out those last three ...

I was a firefighter for 29 years.
I was a firefighter for 29 years. I was diagnosed on June 9th, 2016 -- my 37th ...

I live a happy life but with a haunting nightmare each and every day. And that nightmare is familial ALS.
I AM ...

I lost my mother to ALS. I’m hoping to advocate and get more research done on what causes this disease and to find ...

I built a full life with ALS in it. In September, I will have lived half my life with ALS.
I was diagnosed in ...
The main reason I keep going is my family.
My name is Jasson. I have ALS. The main reason I keep going is my ...

I lost my sister to ALS in 2007. She was my best friend. She was creative, generous, intelligent and beautiful. I ...

What motivates me to fight is my family. I have a supporting family. My three granddaughters are why I fight.
I ...