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I am Jennifer Robb

living with ALS

Missouri


My symptoms started last summer with right ankle weakness that progressed to right foot drop.

I am 56 years old and was diagnosed with ALS this spring. My symptoms started last summer with right ankle weakness that progressed to right foot drop. I finally started riluzole and radicava ors after battling with my insurance for authorization. Little did I know the bigger battle would be affording radicava. It is a shame that newer ALS drugs are not made affordable when they slow progression and decrease care costs.


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