I am Beth Deng
living with ALS
Minnesota
I went to Mayo for 4 days with lots of testing, numerous appointments that came with devastating news of a diagnosis of ALS also known as Lou Gehrig's Disease with no cure and 3-4 years to live.
I have been dealing a lot with my right hand and arm since August. September 20th I went in for Right Carpal Tunnel Release, Guyon’s Canel Exploration and Release, Right Cubital Tunnel Release. As time passed with therapy, lots of pain, symptoms getting worse, I got a second opinion on October 26th. Both surgeons decided it was best for me to be sent to Mayo as it was out of their expertise.
Due to the severity of my condition of curling fingers (no mobility or strength) and pain, I went through surgery which didn’t work. After seeing 2 specialists who were very concerned contacted Mayo to have conference calls to prepare for my arrival. I went to Mayo for 4 days with lots of testing, numerous appointments that came with devastating news of a diagnosis of ALS also known as Lou Gehrig’s Disease with no cure and 3-4 years to live.
I pray with technology these days and treatments I will beat the odds of a death sentence but in the meantime and days to come please keep me and my family in your thoughts and prayers🙏🏻 I will be LIVING with ALS, not DYING with ALS
