Kurt…my husband…was diagnosed with ALS in June of 2022. ALS progressed very fast. Kurt died in August of 2024. I retired from teaching to care for him in March of 2023. It was the hardest thing I have ever done but also the BEST thing I have ever done. Watching ALS take away every aspect of his dignity was heartbreaking. We had such fun things planned for retirement. Kurt was so brave during this whole illness. I admired his will and wit. I also admire our 4 children for always being here for us. I am so very grateful for Kurts medical team. Their empathy……compassion…wonderful care…was beyond.
belief. They worked so hard helping us in so many ways. The ALS society was also another partner who provided us with so many things. Kurt was in our home throughout this disease. Caring for him was hard…physically and emotionally….and sometimes I felt so overwhelmed and alone. But I was determined to be there for him every step of the way. I believe that is what love and commitment is. Ill never regret being with him every day. And I learned to take one day at a time. I am also so very grateful for family….friends….coworkers…..people who helped us in so many ways. Their love and support carried us through. It was a hard journey. I miss Kurt every day. Now I try to give back in little ways to the ALS society and I Am ALS…..I am dedicated to help others as they navigate this disease. Anna Barnick