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Brian Hutner

Brian Hutner

I started noticing strange shifts in heart rate, breathing, and energy levels.
Alan Waite

Alan Waite

She had a joyful presence that positively affected those around her.
Ken Dworkin

Ken Dworkin

My wife (caregiver) and I learned quickly that we had to self-advocate as very few professionals in the medical field understood much about the disease.
Laura Donkel

Laura Donkel

It is a sacred sadness that defines me and I live in deep joy and fervent gratitude for every moment we had as a family of four.
Scarlett Lugo

Scarlett Lugo

I’m a wife and mom of 3 from TX.
Thomas Grassi

Thomas Grassi

The one thing my wife and I loved to do was take trips on our motorcycle.
Susan Dulski

Susan Dulski

I started losing my voice in March 2024 and had trouble swallowing.
Susan Cassidy

Susan Cassidy

My son, Sam Cassidy, was diagnosed with ALS last year, at 26 years old. As with everyone else in this situation, ...
Elizabeth Coccio

Elizabeth Coccio

I cherish the memories we made in the 11 months before she passed away and I miss her every single day.
Anna Barnick

Anna Barnick

I retired from teaching to care for him in March of 2023. It was the hardest thing I have ever done but also the BEST thing I have ever done.
Shirley Downs

Shirley Downs

This is the most horrific thing to watch. I see the love of my life disappearing in front of me.
Jennifer Robb

Jennifer Robb

Like many with ALS, I went through many diagnoses from ankle sprains to sciatica. As symptoms progressed, it became more clear something neurological was going on.
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