Clinical Trials: Frequently Asked Questions
This resource includes frequently asked questions with answers about clinical trials including what they are, what it’s like to participate in them, and more.
ALS Signal – Explore ALS Clinical Research, Trials and Studies
This dashboard from I AM ALS shares active and upcoming clinical research, trials and studies for people with ALS.
Patient-Centric Trial Design (PaCTD) Rating System
This resource from I AM ALS aims to inform the ALS community about each ALS clinical trial’s humaneness, accessibility and design efficiency, and highlight for drug developers the expectations of the community.
Expanded Access (Webinar)
This webinar from Northeast ALS Consortium (NEALS) explains what expanded access is and how it connects patients with life-threatening illnesses to experimental drugs.
Right to Try (Webinar)
This webinar from Northeast ALS Consortium (NEALS) details the history and legal and ethical considerations of Right to Try legislation, which gives terminally ill patients the right to ask companies for access to their investigational drug.