The story of the Les Turner ALS Foundation begins with one man’s ALS diagnosis in 1976. Les Turner, a Chicago area businessman, husband and father, was frustrated by the lack of local resources available to manage the devastating effects of his diagnosis. His family and friends supported his desire to provide support to others affected by the disease with the resources and hope for a cure unavailable to him. In doing so, they inspired his legacy.
For over forty years, the Les Turner ALS Foundation has been Chicagoland’s leader in research, patient care and education about ALS.
Please join us on Saturday, Oct. 22 for the Les Turner ALS Foundation’s Celebration of Life. Led by Support Group Facilitator Anne Lidsky, PhD, this annual service honors those we have lost to ALS. It will be held online via Facebook Watch and recorded for those who cannot attend the live event. Join us for […]
Join us for the 12th Annual Les Turner Symposium on ALS. At this symposium, you will hear from leading ALS scientists and clinicians who will discuss advances in ALS research and care. Individuals with ALS, as well as their family members and caregivers are welcome. Medical professionals who work with patients with ALS are also […]
About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at Shirley Ryan AbilityLab, will discuss the benefits of exercise among people living with ALS along with […]
About the Program: Join us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how to join the National ALS Registry, what information they collect and why, and the type of research the registry is conducting. A Q&A session will […]
This is an extraordinary moment in ALS care, research and discovery. Through the efforts of a fiercely determined group of ALS advocates, two new drugs were approved by the FDA to slow the progression of ALS over the last year. A record total of more than 4,000 people living with ALS, caregivers and families received […]
About the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although their ALS care team is always there to help, they may not feel fully equipped to assist them. The good news is that there are […]
Cognitive Changes in ALS - Thursday, March 23, 2023 12:00 - 1:00 p.m. CT About the Program Join us for our March ALS Learning Series discussing cognitive functions with Catherine Lomen-Hoerth, MD. She will provide an overview of ALS, including its causes and symptoms, and how it affects cognitive functioning. Dr. Lomen-Hoerth will cover the […]
Title: ALS Exercise Date: Thu, Apr 20, 2023, 12:00 PM - 1:00 PM CDT Registration link: https://attendee.gotowebinar.com/register/3042676758300304988 About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at […]
About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for the first gene-targeted therapy in ALS. However, many challenges exist, including few genetic counselors in ALS clinics, and issues with laboratory methods and reporting. Jennifer […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
Date/Time: Monday, June 19, 2023, at 12:00 p.m. CST Registration Link: https://attendee.gotowebinar.com/register/4658833508087010396 About the Program: Not everyone with ALS will need or choose to have a tracheostomy, but there may come a time when it’s necessary for continued breathing. You may have respiratory weakness that can no longer be treated with a mask and non-invasive ventilation. […]