EverythingALS
EverythingALS – The Guam Disease and ALS
VirtualEverythingALS's next webinar on Feb 24th 4pm PDT featuring Dr. Paul Alan Cox, Executive Director of the Brain Chemistry Labs, which focuses on discovering cures for ALS and other neurodegenerative diseases with two drugs in FDA clinical trials. Dr. Cox is featured in "Toxic Puzzle" a medical and environmental detective story about the worldwide search […]
ALS Caregiver Support Group
VirtualPlease connect with us for a time of collaboration and learning! A VERY SPECIAL EverythingALS Patient Community Zoom Meeting will occur Sunday, March 28th at 1 PM Pacific TIme We encourage you to participate in this call hosted by EverythingALS and ALS Hope Foundation. Join our speakers Mary Holt-Paolone, MSRN, and Marie Bishop as they discuss this very important […]
EverythingALS webinar Assistive Technology for Communication, A Spectrum of Options
VirtualThis is bimonthly event
Symptomatic and Pre-Symptomatic Biomarkers for ALS Therapy Development
VirtualEverythingALS is excited for our next speaker on September 8th 4pm PT | 7pm ET! Dr. Michael Benatar from University of Miami will discuss Symptomatic & Pre-symptomatic Biomarkers for ALS Therapy Development. After the presentation, we open up to audience Q&A to answer all your questions, followed by an open forum where you can connect […]
Clenbuterol for ALS: Findings From an Open Label Trial
VirtualEverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of the Duke ALS Clinic. He will be discussing the findings from the Open Label Trial: Clenbuterol for ALS. After the presentation, we open up to […]
A new CIRM funded clinical trial transplanting stem cells releasing GDNF into the motor cortex of patients with ALS
VirtualEverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute, has a long-standing interest in ALS and he was the Sponsor of the first-ever clinical trial delivering stem cells and GDNF to patients that was recently completed […]
We Need to Do Better: Strategies to Identify and Validate EFFECTIVE ALS therapies and Accelerate the Translation
VirtualZoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event: We Need To Do Better: Strategies to Identify and Validate EFFECTIVE ALS Therapies and Accelerate Translation Dr. Lyle W. […]
Antisense Oligonucleotide Therapy for ALS
VirtualWe are excited to host EverythingALS Community Event: Antisense Oligonucleotide Therapy for ALS. We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, March 30, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]
New Gene Therapy for ALS
VirtualWe invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, April 13, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central Time -7:00pm Eastern Time The meeting will be approximately 45-60mins long followed by […]
Augmentative communications program for ALS
We are excited to host EverythingALS Community Event: Augmentative communications program for ALS. We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, April 27, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]