The ALS Association Golden West Chapter is dedicated to the fight against ALS in many ways, including funding global research efforts, supporting scientific and clinical collaboration, connecting people with ALS to clinical trials, partnering with multidisciplinary ALS clinics and centers, educating the public about ALS, providing professional care management services to families facing ALS, pursuing important public policy initiatives, and bringing the ALS community together.
The Golden West Chapter’s compassionate Care Services team provides expert advice and assistance for people living with ALS, free of charge. Our knowledgeable and dedicated Regional Care Managers help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. Support groups throughout our service area provide practical solutions for everyday challenges and a connection with others living with ALS. Medical professionals associated with more than 22 multidisciplinary ALS specialty clinics supported by the Chapter facilitate clinical trials and ALS studies. This proven model of robust, proactive, multidisciplinary care helps people live longer and better with ALS while also advancing the search for treatments and a cure.
An online support group specifically for those with a Familial ALS diagnosis Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsagoldenwest.org; 909-736-5677
Santa Rosa/North Bay ALS Online Support Group Contact Facilitator: Daniel Potapshyn at 707-861-0257 or dpotapshyn@alsagoldenwest.org for information on how to participate using Zoom!
Please contact facilitator Debbie Joy for information on how to join using Zoom! Debbie Joy: 562-741-8138; djoy@alsagoldenwest.org
SAN FRANCISCO COUNTY ALS SUPPORT GROUP 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Taheerah Mujahid, 510-695-2797; tmujahid@alsagoldenwest.org
ASK ME: ALS Research and Care in 2021 Please save the date and join us with your coffee and breakfast on a Saturday morning! This informative event will feature leading ALS researchers and physicians who will explain recent research advancements, answer your important questions, and will give a preview of what to expect in the […]
JOHN GILL CENTRAL COAST - ALS SUPPORT GROUP 2:00 - 4:00 PM Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with TaheerahMindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness, connection, […]
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin […]
Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP 818-292-4315 or Kkelsey@alsagoldenwest.org
All-Hawaii Support Group Please contact Regional Care Manager Cindy for information on how to participate via Zoom! Facilitator: Cindy Hatori, MS chatori@alsagoldenwest.org; 808-219-9036
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org