The ALS Association Golden West Chapter is dedicated to the fight against ALS in many ways, including funding global research efforts, supporting scientific and clinical collaboration, connecting people with ALS to clinical trials, partnering with multidisciplinary ALS clinics and centers, educating the public about ALS, providing professional care management services to families facing ALS, pursuing important public policy initiatives, and bringing the ALS community together.
The Golden West Chapter’s compassionate Care Services team provides expert advice and assistance for people living with ALS, free of charge. Our knowledgeable and dedicated Regional Care Managers help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. Support groups throughout our service area provide practical solutions for everyday challenges and a connection with others living with ALS. Medical professionals associated with more than 22 multidisciplinary ALS specialty clinics supported by the Chapter facilitate clinical trials and ALS studies. This proven model of robust, proactive, multidisciplinary care helps people live longer and better with ALS while also advancing the search for treatments and a cure.
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin […]
Contact Barbara for information on how to join online using Zoom! Facilitator: Barbara Porush, MA, MFT 805-222-3012 or bporush@alsagoldenwest.org
San Luis Obispo - ALS Online Support Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
All-Hawaii Support Group Please contact Regional Care Manager Terryn Davis for information on how to participate via Zoom! tdavis@alsagoldenwest.org 808-597-6416
The Walk to Defeat ALS is an opportunity to bring hope to people impacted by ALS, to raise funds for treatments and cures, and to come together in support of the ALS community. Since we can't gather in person, we are working on ways to bring the Walk to you! With our shared "Never Give […]
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org
All-Chapter Community Support Group Check back for information on special speaker! Contact Care Manager Robin Eller for information on how to participate using Zoom! 661-364-1913; reller@alsagoldenwest.org